Donate

Every donation gets us one step closer to treatments, and ultimately a cure, for HD.

HDF icon It is very important to our family to make a strong commitment to the HDF. It is foremost in our hearts that there will someday be a cure or a way to improve the lives of those who are at risk of HD. We have great confidence in the work that the Foundation is doing and we understand the necessity to support these dedicated and brilliant scientists who are working towards this goal.”

Lauren Baker Pinkus
Member, HDF Board of Directors

Every donation gets us one step closer to treatments, and ultimately a cure, for HD.

HDF icon It is very important to our family to make a strong commitment to the HDF. It is foremost in our hearts that there will someday be a cure or a way to improve the lives of those who are at risk of HD. We have great confidence in the work that the Foundation is doing and we understand the necessity to support these dedicated and brilliant scientists who are working towards this goal.”

Lauren Baker Pinkus
Member, HDF Board of Directors

Ways to Give

HDF is a registered as a 501(c)(3) non-profit organization. Contributions to the Hereditary Disease Foundation are tax-deductible to the extent permitted by law. Federal tax I.D. number is 23-7376197.

Become a Partner in Research

Our Research Program is supported by a partnership between loyal and generous donors and HDF-funded scientists. We welcome new Partners in Research in pursuing game-changing scientific research that will make a powerful difference in the lives of families around the world impacted by HD and other neurodegenerative disorders. Partners in Research make a significant contribution to the Foundation’s Research Program and often encourage friends and family to do the same.

If you would like to discuss becoming a Partner in Research, please email our Director of Development.

Gifts by Mail

Checks should be made payable to the Hereditary Disease Foundation and sent to:
Hereditary Disease Foundation
601 West 168th Street, Suite 54
New York, NY 10032

Please include a note if you would like this gift to be made in honor of someone.

Planned Giving

Leave a Legacy of Hope

At the Hereditary Disease Foundation, we believe in the power of legacy. Your planned gift can be a beacon of hope for future generations, driving the mission to find treatments and ultimately a cure for Huntington’s disease and related disorders like ALS, Parkinson’s, and Alzheimer’s disease.

Planned giving allows you to make a significant impact on the future of Huntington’s disease research while aligning with your financial and philanthropic goals. By including HDF in your estate plans, you ensure that groundbreaking research continues to advance, bringing us closer to life-changing treatments and cures.

Easy Estate Planning

We’ve partnered with FreeWill to offer an online estate planning tool that makes it easy and cost-free to make your plan. In as little as 20 minutes, you can help support our mission for future generations. This secure tool guides you through the process, making it easier than ever to create your will and include a legacy gift to HDF.

We invite you to explore the possibilities of planned giving and how your legacy can be part of our transformative mission. For more information, please contact us or click here to start your will today.

Together, we can create a future where Huntington’s disease is a thing of the past. Thank you for considering a lasting legacy with the Hereditary Disease Foundation.

Tax-smart gifts

Many individuals are increasingly choosing to give non-cash assets, which allows them to have a bigger impact at a lower cost. You can learn more below about gift opportunities that can maximize the impact of your support to the HDF while providing tax benefits for you!

A gift of highly appreciated stock or securities can often unlock savings from an unused asset. When structured properly, the gift results in avoidance or substantial reduction of capital gains tax as well as a charitable income tax deduction. Whether you hold your securities in certificate form or in a brokerage account, we can provide guidance on how to make the donation. Please call 212.928.2121 or email us to assist so that you do not inadvertently lose the tax advantage by selling the securities in advance of your gift.

If you are over 70 1/2 and hold an IRA, you may consider contributing a Qualified Charitable Distribution (QCD) to Hereditary Disease Foundation or another public charity. QCDs can be counted toward your Required Minimum Distribution (RMD) as long as certain rules are met. Funds must be directly transferred to the charity from the IRA custodian company according to specified deadlines, and special tax filing requirements apply. Consult a tax advisor and your financial institution to determine if making an IRA QCD gift is appropriate for your situation. As of January 2024.

You are generally able to recommend in advance (on a form provided by the account manager) that at the end of your lifetime a lump-sum grant be made from your donor-advised fund account to charity. Check your donor-advised fund’s policies and guidelines to confirm the steps necessary to make this gift.

Gifts to Honor, Remember, and Celebrate

Celebrate an occasion – birthday, wedding, anniversary, graduation – by requesting participants give a donation to the HDF rather than sending gifts. Similarly, gifts in memory of a loved one may be requested in lieu of flowers at a memorial service or funeral.

If you participate in a sporting event, ask your friends and family to sponsor you with gifts to the HDF. Host your own event with proceeds going to support the HDF. Create a page in honor or in memory of a loved one or host an event and share your page with family and friends.

Corporate Matching Program

If you are affiliated with a company that provides matching funds for charitable donations by employees, please check with your company’s human resources office or your employee manual to potentially double or triple your gift.

View the Hereditary Disease Foundation’s most recent Audited Financial Statement and Form 990.

Hereditary Disease Foundation Privacy Policy

The Hereditary Disease Foundation (“HDF”) is committed to protecting the privacy of our donors. The HDF will not share or sell a donor’s personal information with anyone else, nor send donor mailings on behalf of other organizations.

The HDF does not collect any personal information about individuals – such as names and postal or email addresses – except when such information is knowingly provided to us.

Donations made via credit card are processed through Blackbaud Merchant Services, a donation platform for charities. Blackbaud Merchant Services provides convenience, security and customization for collecting donations online. All information collected by Blackbaud Merchant Services is securely processed and stored. Blackbaud Merchant Services takes many measures to protect the confidentiality and security of your information. They use encryption technology to ensure the safe transmission and storage of your information. Blackbaud Merchant Services shares personal information and donation amount with HDF, but no information is shared with third parties by selling, giving, trading or any other method. Users of this site will not receive unsolicited contact from third parties.

You may need to give contact information (such as name and email address) and financial information (such as credit card number and expiration date). HDF uses this information for billing purposes and to contact you about the HDF-related topics.

If you wish to subscribe to our mailing list, we will use your name and email address. Out of respect for your privacy, please send us an email if you would like to Opt-out and unsubscribe.